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Beyond The Limits of Myasthenia Gravis!by Clete GressA "Self Portrait of my Life" with Myasthenia! |
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Our Comment Book I'd like to know what you think about my book or my web site. Please, leave your comments in this public Comment Log so I can share your thoughts with other visitors. |
CommentsHello Mr. Gress and Family, 5/4/2008 My name is Diane and I was dx in March of 2003 with MG. I read your book early in the walk with this hidden Monster we call "MG". And I've just finished your book, again. I'm sorry that you were cursed with MG, but a small part of me Thanks God for you & those who have shared their pearls of wisdom with us "newbies". You have given me a more positive way to look at it all. And that isolated feeling I seem to carry everyday, subsides. Just knowing I am not alone in this walk OR maybe its just the good cry I have that relieves it, too. You're always in my prayers. Is there any chance that you and your son might ever considered adding chapter updates? I'd love to read them. Love & Prayers, your MG relative Diane Baca *Roseville,CA.* mg2003@comcast.net
CommentsHello! I think I picked up a couple of your prints/etchings(?) today at an yard sale in Manvel, Texas. I have #3/8 of "The Architect" (1965) and #4/7 of "The Bridge" (1965) Can you tell me what you remember about these and any history behind them? The Archetect is cubist style and "The Bridge" is sketched with a man climbing to a dizzying height on what appears to be a suspension bridge. I would love to hear from you about these and hope that this comment brings you many wonderfuol memories and I love your style!
CommentsDear Mr. Gress, I am so blessed to have come across your book.It has truely touched my life and I see alot of myself in you. I believe that your book will help me in alot of ways and I can't wait to try your techs. myself. I am 45yrs and a Mother of 3. My MG was confirmed in Aug 2007. But I was having symptoms after recovering from being bed ridden for 3months after my 3rd daughter in 2001. At first I thought I just needed to get back into the groove of things. I had to have her C-section along with a Hysteroscopy. Trying to recover from this,plus going back to work full time,and I was in full time ministry in my church. This had seemed to be a GREAT challange for me. I just could not get my body to fuction the way I was use too. I just kept pushing myself as Is normal for me. My way of thinking is "If I stop going this will over take me,I have to fight through this,I have a Family to take care of,etc." In the past 5 yrs. my symptoms continued to get worse. Blurred vision,Stairs were harder to climb, walking, standing to long,muscle weekness,numbness worsening,the list goes on.I have had some family life challanges to deal with that I thought was why I was going through all of this. My mother came down with Cancer in 2002along with losing 2 members from her family side with cancer, I had lost my Mother- in- law from altizmers, 2yrs later we lost my father in law. I continued to push myself thinking that I just need to get myself in shape or something. I was justing worse. My last attempt to try and walk up our 2 flights of stairs at work. I decided to talk to my Doctor. And their it was, after serval tests, CT scan and a muscle bysopy it was confirmed. I am currently taking Mestion 2tablets 3times a day with little affect. I am still trying to work full time and taking care of my precious family that does not understand. To make a long comment short. I have been imspired by your book and like you I am seeking answers in everyway that I can. You are a hero in my eyes and I pray that God will continue to bless you and your family. your E-mail friend Diane Glueckert Dglueckert@earthlink.net
Commentsthanks for having your book online. i come from Kenya but its unfornate i have to learn more about MG after loosing my friend in February 2007 she used to get very bad attacks on her breathing and always needed emergency medical attention and always taken to ICU for ventilation. wish we had seen your book and this site before. God bless you
Commentscan you tell me if you were exposed to agent orange in the service. my husband was recently diagnosed with this myasthenia gravis. he was in Vietnam in 1972 and exposed to agent orange and research we have done shows a probable relationship. he is just now trying to get signed up at the VA system and saw a disability evaluator recently to get a possible claim. he is only 56 years old and his health is deteriorating due to this MG. anyway, do you know of other possible internet sites with Vietnam veterans with this disease that i can do more research with them. thank you. what an inspiring book you have written. my name is Becky and if you have any help for me to do more research to help my husband it would be greatly appreciated.
CommentsThank you for your book. I was diagnosed with MG in 2002. I have benifited from your research. It has been the best resource for me so far. I only just recently met one other person with MG and I passed it on to her. What a gift thank you
CommentsDear Mr. Gress, I just finished reading your online book, and I am just so amazed at the similarities in your thoughts and my own. I was diagnosed with MG in 2003 at the age of 50. Up until that time, I was a 911 operator who always lived on the adrenaline rushes after helping someone; and always felt the pressure to perform without defeat, as I was divorced and raising my two children on my own and knew that I had to be there for them. As of now, I am still unable to work...I am on SSD and Disability Pension from my job. I have just recently become interested in meditation, and I have noticed that I do seem to have better control over my weakness. I also find it helpful not to be regimented anymore about doing anything. As you mentioned in your book, I just go with the flow and then return to finish something when I have the energy. I was always a person with a strict schedule to stick to; and I find that just doesn't work anymore. Reading your book has given me some inspiration to continue with the meditation, and try more positive mind control. Depression is something that is so easy to seep its way inside of you; and I see how everything spirals from there. Initially, I was on 60 mg Prednisone daily, however, when my Imuran became effective; I was able to wean off of it completely. Absolutely horrible drug...it took me over a year and a half to withdraw; it was extremely painful. I still take 2-3 Mestinon tablets daily also. I just wanted you to know that you have given me new hope about returning to live a more normal life. I found your ideas to be very sensible, and I hope to see a huge improvement in my own condition. Thank you for sharing this with others. Sincerely, Linda Kametz (lmkalert@aol.com)
CommentsMr. Gress, Thank you! I could not stop reading this book. Your insight and experiences are well documented in the book and have insipired me to take charge of myself and my MG. I plan to start meditation and yoga. Although I believe each patient's experiences w/ MG are different, so much of what I feel and thought you have expressed. It's like you have read my mind! I encourage all thoise diagnosed w/ MG to read this book. Thanks again for opening yourself up wand sharing your story. I am grateful to you. Sincerely, Nancy Buehler New York
CommentsJust checking on Clete. Hugs and Prayers from Carolyn
CommentsMy name is Jenny and I am a 28 year old wife and mother. I have had some very strange symptoms since just before my 26th birthday and after a lot of researching I think I may have MG. The symptoms began with weakness in my right eye muscles - a lot of drooping - and then progressed to weakness on my entire right side, along with muscular aching like they've been overworked or something. When this first began I had health insurance so an MRI was done (which was normal) and an EEG was done (which was also fine), but then our health insurance ended and we were unable to get an answer for the problem. Years later, I'm still struggling with it. Some days my right eye droops so much I can barely see out of it, and I limp because my leg muscles are sore and weak - I look like I've had a stroke or something! I get so frustrated I just break down crying - like when I can't get the windows in the house open or something. I've also recently discovered on a test that when my eye is droopy it makes my reading rate slower, which directly effects any college classes I try to take. This weakness throughout my right side does improve if I get a decent amount of rest - but I don't get a lot of that. My oldest son is a high functioning autistic and doesn't sleep well - so I'm up with him a couple of times a night. My other son is up every once in awhile as well, so I often just don't get enough rest to be able to function properly the next day. I'm afraid my symptoms are beginning to get worse - I've been under a lot of stress lately, and I'm finding that not only is the weakness coming on more often, but I'm feeling "jittery" regularly and I'm having some weakness in my left arm now. A few times in the last couple of years I've gone a couple of months managing to get enough rest and have felt like maybe the "weird" problems I'd been having were over, but then they just came back. I just finished reading your book, and I'm hoping I can get your ideas to work for me. I'm hoping to get an actual diagnosis someday when I can afford it - until then, at least I can try something. Thanks for giving me a sense of hope, Jennifer Buckley
Commentsplease vissit us to http://myasthenie.forumactif.com
CommentsDear Mr. Tschirhart below » In-case you didn't receive my recent e-mail I'm posting this here in hopes that you return and review Our Comment Book again. Clete absolutely gives you permission to print his book and try and recoup your cost of printing only. I see from your post below that you understand how a copyright works so no other words are necessary. Clete & I think it's wonderful that you're starting up a support group in your area to help others and if Clete's book can help in any small way, that would be great. Once you have your group in place if you would like I can post the contact information on our Links Page. Please let me know if there is any thing else I can do for you. Take Care & God Bless ~ Phillip Gress philgress@beyondthelimits.net
CommentsDear Clete: I have read your book and appreciate your sharing your story. I am starting a support group for MG here in San Antonio TX and would like to share your story with them. I can give others access to your website s they can view it "free" on-line. However, I'd like to copy it and have it available to hand out in hard copy. I do not plan to plan to reproduce it to make a profit..just the cost of printing it. Do I have your permission to do this? If not, do you have hard copies available for sale? Elroy J. Tschirhart 210-493-7164 elroytschirhart@sbcglobal.net
CommentsDear Marsha below » Thank you for the heads up on this one! I was very surprised, and pleased, to see my Dad’s book on E-Bay. I was taken aback though with the price, $79.95! That’s a little steep for a paperback copy but we have no control over used copies, I did however leave a nice note with them and maybe they’ll bring the price down. Thanks again for the heads up and your concern. All My Best ~ Phillip Gress philgress@beyondthelimits.net
CommentsAs a fellow Myasthenic researching for any information I can find, I stumbled across this Ebay auction that I thought you should be made aware of. Hope all is well, Marsha http://cgi.ebay.com/Beyond-the-Limits-A-Self-Portrait-of-Myasthenia-Gravis_W0QQitemZ330031860541QQihZ014QQcategoryZ378QQrdZ1QQssPageNameZWD1VQQcmdZViewItem
CommentsYour book was very uplifting. Although I do not have MG, I have been diagnosed with fibromyalgia. One of the symptoms of fibromyalgia is that the upper body muscles (shoulders/neck) become tight, sometimes making it difficult to speak. I have started using my mind to help relax the muscles. Your book has given me insight on how meditation can help me. Michelle from Georgia
CommentsI need to e-mail Mr. Gress, to ask him if I can translate his book to Portuguese. Would you please send me his e-mail address? dulce@estudiopedra.com.br Thank you Dulce ( from Brazil )
CommentsClete thank you for your insight that you put into this book. It is Great!
Commentshi my name is alexander gress i´m from germany and find u´r web side i´m 34 years old and search for ppl with name gress
CommentsThank you so much for sharing your story and your theories of possible causes for MG. I read your book a few weeks ago and, I have to add, I stayed up most of the night because I had to read to the end! I felt so emotional when I had finished - you touched many chords. It proved a turning point for me so I had to return to your site to thank you and to tell you that the double vision I have had since last May is, I would say, 90% better. I am lucky that I have only had double vision but it has been a long road to health because I have done it without recourse to Mestinon or steroids. I first had double vision in 1994 which baffled the experts and righted itself after 4 months. I then had perfect sight until 2003 when I had double vision again (again undiagnosed). I thought sleep was the answer - I had just been overdoing things and, yes, it went away in just 4 weeks. So in May 2005 I didn't panic, I just concentrated on relaxing and sleeping but nothing I did seemed to help and it became clear I was going to have to push for a diagnosis. With the diagnosis came short-lived relief when it began to dawn on me that my body meant business this time and if I didn't want MG to affect more than my eyes I needed to do more than just address obvious health issues like better diet, exercise and more sleep. When I read your book, I really related to your theory that certain personality types may be susceptible to MG, especially ones having a "strong sense of duty". I realized how much I had taken on caring for an elderly mother (she lives not far away in her own flat but I have taken on more and more responsibility for her over the last few years.) I have now organized qualified people to share that caring with me (a huge relief!) and this means I can now spend quality time with her and we can enjoy each other's company instead of me running about coping with crises all the time. I also realized I was ignoring my naturally strong creative needs, never getting around to doing those things I enjoy and which I feel are my special gifts. I have enrolled in a life drawing class and, after overcoming a fear that I would not be able to draw as I once could, I have found that as I immersed myself in concentration I forgot about my eyes and they have improved measurably with every class. I also really related to your camping trips on your own - I had said to my husband right back in May that there was a strong feeling inside me that I needed to find a small cottage on a deserted island in which to spend time on my own before I could heal myself. There's not much wilderness here in Southern England (!) but I did start up Yoga and this has given me the tools with which to meditate and relax. I can now see a time coming in the very near future when I will be able to see consistently and all day, and I will endeavor to take forward the lessons I have learned into a healthy drug-free future. Thank you so much for your help and inspiration. Kindest regards, Jen (from Hampshire, England)
CommentsThanks for the read of your book - very interesting and I think I too fit into your profile of why myasthenia happens to certain people - its good to find information written by another myasthenic rather than a so called professional - thanks again - Claire, Yorkshire, England
CommentsHi Grandpa! I'm using the computer at the library and so I can't e-mail (I'm sure Mom filled you in about all that!), so I'm leaving everyone messages on their guest books. We hope you're feeling good, and I really want to try and come out to see y'all very soon with the kids. Talk to you later. Love, Valarie
CommentsMr. Gress, my name is Diana Freeman and I also have MG. I was diagnosed at the age of 21 and was told I would not be able to have children and would be wheelchair bound by the age of 30. I am now 34 years old and am the mother of 2 wonderful boys, Jayden age 10 and Jacob age 8. I enjoyed your website and I have downloaded your book to read. I wish you the best of health and will keep you and your family in my prayers. Sincerely Diana
CommentsClete, my friend and colleague in the MG world. Hello from Tulsa! Thanks Phil for putting together such a wonderful web page! Many hugs to the whole family, especially to Mrs. Clete for 50+ years! How great a mission-to get your book out in space for the world-reader to learn so much from you firsthand! Reading it gave me Hope, Strength, and a well for stamina to marry and now raising 2 Mozambican adoptives during their teen years --all with MG. Keep going Clete! Carolyn [Belshe] Cowen Date: 29 Mar 2005 Comments Prof. Jeff Frankel Date: 28 Mar 2005 Comments Hi! My wife and I know someone with MG. We are going to share your Web site with him. Thanks! Jonathan Crichfield Manassas, Virginia Date: 17 Jan 2005 Comments my dad's name is Steve Date: 27 Sep 2004 Comments Enjoyed your site very much... great stuff!! Regards Sleep Country Canada Date: 10 Sep 2004 Comments Thank you so much for all of your information and for sharing you life with others. My Dad has been diagnosed with MG on top of his already diagnosed Parkinson's, this has been very hard for me to deal with. But thanks to you I have some hope. I love my Dad so much and was so confused on his double diagnosis. So thank you and God bless you and your family! Stephenie Westmoreland Branson, Missouri Jerrylives30@aol.com Date: 10 Sep 2004 Comments Thank you so much for your book and your website. My dad has MG and Parkinson's. This has been very hard for me to accept. I was online one evening looking for information on the double diagnosis and came across your site about MG. I again just wanted to say thank you and God Bless You and your family...... I am pretty emotional when it comes to talking about my Dad. But you have given me some hope. Stephenie Westmoreland Branson, Missouri Jerrylives30@aol.com Date: 06 Sep 2004 Comments What an incredible story but definitely not "unbelievable" incredible. It so closely parallels my own life story, it is quite remarkable. I just came across the book last night and couldn't go to bed until I had read it all. I was in the Army, 1973, in Texas no less, at Brooke Army Medical Center, Ft Sam Houston here in San Antonio. The entire story would take at least another 80 pages -- probably more. I was first diagnosed with late onset acid maltase deficiency, a diagnosis that has been well confirmed. It has very similar symptoms to MG. I was medically retired at 100% in 1974. This past March people began to ask me what was wrong with my eye. "I don't know. What's wrong with my eye?" I would respond. They would say, "It just doesn't look right." After a few days of this, I saw my primary care physician who got on the phone to my neurologist almost immediately when he saw me. My neurologist had me immediately come to his office and it is not too much of an exaggeration to say he almost had a panic attack on the spot. My eyelid was drooping to the point I could barely open it by then and it didn't take very long to confirm I also have MG. I have precisely the personality type described in this book and, having read it, now it doesn't surprise me that I have MG. I learned over a 30+ year period how to push my muscles way beyond the norm thanks to the acid maltase deficiency. And the amazing thing is that I have already been using many of the techniques -- meditation, rebound -- to deal with the AMD. One other coincidence, I teach photography (was never patient enough for painting) and am working on a series of books on the South Texas hill and brush country that began while hiking in several Texas State Nature Areas. It is going to take me a few weeks to sort through everything that is racing through my mind right now. Thanks for making this book available on the web. I will be in touch by email soon. Donald Ewers, San Antonio, TX Date: 15 Jun 2004 Comments Dear Sir, I have just finished reading your publication. I can't tell you how much I enjoyed it. I read it in just a few hours. I was so grateful to have a man, similar to my husband give such a detailed experience about dealing with such a life changing illness. My husband, a Peruvian, whose father was a Chief Engineer for the Marshall Marines in Peru followed his fathers example in ambitiously moving to the United States more than 25 years ago and carving out a life for himself with no help from anyone. We now have 5 children and 2 grandchildren. He has two months ago been diagnosed with Myasthenia Gravis. His work is Running a Company single handedly, Construction. Commercial and Remodeling. Since his diagnosis he has been working as if it is his last chance to ever draw money....Just as you said that you did the first year of your diagnosis. So far he only has his eyes and neck effected by the illness although at times he chokes easily over water, and once on food at a restaurant... I cant tell you how much it has meant to me to find your book to understand him. We actually have the opportunity to sell our home and build on some land in Costa Rica and let my husband draw disability. I have decided that is the right thing to do to simplify and allow my husband to have time to heal and put into practice the suggestions that you have made. They make so much sense to me. I am especially fond of the meditation idea, and its connection to a faith in our Creator, as we are a very Religiously devoted family," Jehovah's Witnesses." Meditation on Spiritual things and especially God's Word the Bible is part of our Dailey routine. My husband has given us many years of hard work and comfort in making a good living for us and I think that now in his time of need it is only right that we put him first for a change. Your beautifully written book has been a great help to me. I cannot emphasize that enough. My husband really is sure that he is not going to get any worse. I am not sure. Besides his being a determined person as you describe the type that is effected. His dream was to get out from under the extreme pressure of his hard work and Moving to Costa Rica and having a simple life and teaching our children a better way to live. We did this and my middle child was raped and we returned to the States. I'm sure he had to have covered his feelings and suppressed this , having a deteriorating effect on his immune system. He returned to have the same stress and has had sleep apnea for 15 years. He also gained weight up to 400 pounds at the time of his diagnosis of mg. Since then he has been on a diet and lost about 50 pounds. He still works hard on this. So my point is you can see that he fits the profile as you have described. I am sure I will continue to read this book over and over. Thank you so much for your eloquently written book that will help me help my husband of 26 years, he is only 53 to cope with this disability. P.S. did you ever resolve the fear of the flying experience... Truly I am grateful, Deborah Lynn , ATLANTA GA. Date: 29 Mar 2004 Comments Clete, 10 yrs. ago, I contacted you and ordered your book. We even corresponded for a time. Your formula and theory on adrenalin and its effects on MG are so correct. Even though my MG has progressed steadily. Whenever, faced with an adrenalin stimulating event, my MG improves for that time. However, when the adrenalin episode waines, I get hit with the full impact of having over done. Now, the trick is to keep the excitement, to improve the MG symptoms. Hence, your book. With continued appreciation for your personal work. Your MG friend, Diane Mount email dmsweetie@juno.com Date: 06 Mar 2004 Comments To all of my Father’s visitors: We just celebrated my Mom & Dad’s 50th. Wedding Anniversary, February 6th. 2004! Clete & Joan Gress have now been married for 50 wonderful years. I could not have been blessed with two more Loving Parents! Happy Anniversary Mom & Dad! Love ~ from your son, Phil Date: 06 Feb 2004 Comments I found your book interesting. I was diagnosed with MG 16 months ago, and medication has helped very little. At this point I'm willing to try whatever works! thanks for sharing your experience! Anne G. Date: 06 Jan 2004 Comments I also have MG, but only got 30% from the VA, since they only examined once on a "good" day. How can I get the VA to increase my rate since my ams, legs, shoulders and respiratory muscles are all affected? My e-mail is Frayne538@NTW.com. Thank you for this helpful site. Date: 29 Dec 2003 Comments I like your self have MG. At times it can be a very isolating condition. Thankyou for this informative and interesting site. I am inspired by it. Jill.C. Date: 22 Nov 2003 Comments I'm doing a class report on the impact of MG on social interactions. Thank you for your personal account of MG. TM Date: 06 Nov 2003 Comments I need ro know the email addresses of doctors in America just 2003 guest book to enable me have contact with them because of my programme Date: 28 Oct 2003 Comments i have seen this guest book and have understood the sufferings of many people, i want to help any person who may need my financial assistance, my close relative have suffered from the disease. any interested person can contact me on cappaegosis@yahoo.com ,i also want to commend those that opened the guest book, thanks Dr. Craig mert Date: 14 Oct 2003 Comments After I readed about mysthenia gravis I found out that it is a very fatal dissease to have to live with and to see a love have to suffer, this really touch me because Iam very thankful that God made me the way he did. by, Latoya Davis Date: 21 Sep 2003 Comments Dear Mr. Gress, I read your book several months ago and really enjoyed it. It has helped me tremendously to understand a little more about what my body is going through. I appreciate it greatly that you’ve chosen to offer your hard work to those of us who also suffer at no cost! God Bless and thank you again. Ralph Jackson….Medford, OR Date: 06 Aug 2003 Comments I found your book very helpful and can relate to alot of it, not now but in my past that led up to now and the MG in my eyes, it helped me understand MG. Thank you. Helen Owens Date: 31 Jul 2003 Comments My Name is Penny, and I was diagnosed with MG 11 months ago. I am currently on mestinon and taking monthly IVIG treatments, which help some. I have not met or spoke to another mg patient, and would just like to know what is in store for me. I have eye droopiness, double vision, arm and leg weakness, and shortness of breath. I have been on Imuran, but my doc took me off after 3 months. I would just like to know worse case as well as hope. Please e-mail me when you get a chance. You have a beautiful family, and i enjoyed your website. Date: 11 Jul 2003 Comments Dear Clete, After reading your book, I felt compelled to revisit your website and write you a thank you note for sharing your life with all of us! Your book was so well done that I couldn't put it down. Thank you again. God bless you! Nancy Thompson - Denver, CO Date: 15 Jun 2003 Comments I am looking forward to download your book and read. My name is Rozana. I am from Albania. If you don't know, ALBANIA is a third world country between Greece and Italy. I actually live in America for almost three years. I go to the university of Iowa and I have a wonderful husband who I married last September. The reason I keep reading about MG and its webpages is because my dad who is still in Albania suffers from MG. He is been diagnosed with it almost 30 years from now. What a miracle for him and for us, his children to see him fight over this disease. We thank God and pray every day for those people that suffer with MG to become better. We thank and pray everyday for the doctors and the science being able to fight this disease by all means. Anyway, I have so much to talk about my dad and what I am doing now about this disease. I am so much trying to set an organization in Albania, so MG patients will have better chances to fight over this. Now I am in a situation that I need help. Dad is in a very bad situation. His MG gave him diabetes because of taking cortisone ( I hope I spelled it right) for a very long time. Doctors in Albania can not do anything at this point. Because it is a third world country (very poor) doctors do not have the technology and the knowledge to research about MG at thi point. I have tried to contact specialized MG doctors here in America and I have got no answer. Please help me if any of you MG patient are at this stage and have found the substitute medicine for cortisone. Please I really need help. I don't want to loose my dad now. I have not seen him for three years. I live in Cedar Rapids, Iowa. AGAIN, PLEASE HELP ME IF YOU HAVE THE ANSWER. MY TEL: 319-373-2034 MY E-MAIL RKADIL@HOTMAIL.COM. GOD BLESS TO ALL OF YOU WHO HELP YOURSELFS AND THE OTHERS. LOVE ROZANA AND HER HUSBAND TYSON. Date: 05 Jun 2003 Comments Excellent, the only real support when no other has been available, will send Email now that we have found your book - thank you! Don and Moira Newcastle Australia (Don - MG) Date: 04 Jun 2003 Comments Very nice book. It has already helped me. Brij Date: 18 May 2003 Comments RG...husband of someone with myasthenia gravis.i am in search of all information that i can get on this dadburn disease that wrecks everyones lives it infects.She was diagonised a little over a year ago just after my fathers death from multiple myeloma blood cancer.nothng like a double wammy ,but God only gives us what we can handle if it becomes to much ,all we have to do is ask an look.As a truck driver its hard to be home when you are needed.God has blessed us with an office job where i now can be home more.Now all we have to do is get adjusted to the situation(if that is possible).thank you for this web site full of the info i am looking for. god bless Date: 14 May 2003 Comments You know I've always been there for you. Love Doc. Date: 21 Apr 2003 Comments My husband has MG and I didn't realize until now that you have a web site and a book. I am writing this from Newfoundland, Canada and would like to know where I can get a copy of your book. Thanks Kathy Date: 21 Mar 2003 Comments Clete, Thank you for your book. I got a copy several days ago and just finished it last night. I couldn't put it down! I too have MG and your book helped put a few things into perspective! Thanks again -- Rick Johnson Date: 14 Mar 2003 Comments Thank God for this brave man that was willing to work so hard to experiment with his Myasthenia Gravis and was so willing to share this positive information with others that have MG. I am so thankful to know about this book which is offers free on this website so that I can print it and use it as a textbook and best of all it is in lay terms and very, very reassuring for family and friends of MG patients. Thanks to all the Grees family for their faith and care. I will forever be greatful and you will be in my thoughts and prayers. Jimmie Archie Harris jharris@brazosnet.com Date: 26 Feb 2003 Comments Hi Clete, You may not remember me, but I remember you and your wonderful book. Its Diane from formally San Diego, now in No. Ca. I contacted you almost 10 years ago now. Yours was my first contact with MG, when in the early days things were so confusing and overwhelming, your message of perserverence and triumph, is inspiring. Yes, 10 yrs. later, still MG, gen. but I stay positive, have lost most of my voice, but am busy typing and staying in contact that way. Wonderful website, I have told others by word of mouth about your wonderful personal account with MG. Take care, Blessings to you and your family. Diane Mount, Windsor Ca. Date: 06 Jan 2003 Comments Hi! I haven't read your new book yet, but I will. Boy, I am really impressed with this web-site. I love you lots. So great to see you last Sunday. with love, your little sister, Grace Marie Benson-Shafer Date: 30 Dec 2002 Comments thank you very much for this interesting book - I was diagnosed with MG in January 2002 and have been able to find little literature written by MG sufferers - this book looks into the personalities of MG sufferers not the chemical based facts written by experts! Thank you once again, I will enjoy finishing this book and maybe posting more comments then. Claire Hunter (England) Date: 15 Dec 2002 Comments Cathie White I am 59 of age with MG the only way is laugher and looking for the good or positive things and ways of life happy is family freinds god and what you and only you make like blue bird or I rather like the green bird of happy days and life so much life around your book show that ==love and love everything and life==thank you for sharing ==Cathie White Date: 13 Dec 2002 Comments Just clicked onto your new website. We have a copy of your book you sent to us several years ago. We were very impressed with it and as we had known you before you wrote the book it meant a lot to us that you sent one to us. I had a sister who also had MS. She passed away 4 years ago at the age of 72. We shared many good times with you and Joan while stationed in England in the 50's. Still hope to see you one of these days. We send our love to both of you and your family. Your Steve still has a special place in my heart, and I also got to love and hug Dave as a baby. You probably know who this is by now. Again we send our deep affection and respect to both of you "Harry" & Cokie Harris |
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